Search for dissertations about: "Ann-Marie Kassa"

Found 1 swedish dissertation containing the words Ann-Marie Kassa.

2. 1. Living with VACTERL association : From the perspectives of children, adolescents and their parents

   Author : Ann-Marie Kassa; Helene Engstrand Lilja; Gunn Engvall; Agneta Anderzén Carlsson; Uppsala universitet; []
   Keywords : Congenital malformations; Experiences of health care; Health-related quality of life; Neurodevelopmental function; Physical dysfunction; Psychological well-being; VACTERL association; Barnkirurgi; Pediatric Surgery;

   Abstract : VACTERL association is a rare and complex congenital condition often requiring repeated surgery and entailing various physical sequelae. Knowledge is scarce regarding experiences of the health condition and health care, need of support at school, health-related quality of life (HRQoL), and psychological well-being in children, adolescents and their parents. READ MORE