Search for dissertations about: "Muscular dystrophy"

Showing result 1 - 5 of 37 swedish dissertations containing the words Muscular dystrophy.

  1. 1. Living with muscular dystrophy : Illness experience, activities of daily living, coping, quality of life and rehabilitation

    Author : Birgitta Nätterlund; Uppsala universitet; []
    Keywords : Medical sciences; Muscular dystrophy; illness experiences; activities of daily living; coping; quality of life; rehabilitation; MEDICIN OCH VÅRD; MEDICINE; MEDICIN; omvårdnadsforskning med medicinsk inriktning; Caring Sciences;

    Abstract : The overall aim was to study and gain knowledge about what it means to live with muscular dystrophy and to study rehabilitation from the patient's perspective, among adults with muscular dystrophy in three Swedish counties: Örebro, Östergötland and Norrbotten. The thesis comprises two qualitative and three quantitative studies. READ MORE

  2. 2. Consequences of Muscular Dystrophy : Impairment, Disability, Coping and Quality of Life

    Author : Gerd Ahlström; Jönköping University; []
    Keywords : MEDICAL AND HEALTH SCIENCES; MEDICIN OCH HÄLSOVETENSKAP; MEDICAL AND HEALTH SCIENCES; MEDICIN OCH HÄLSOVETENSKAP; MEDICIN OCH HÄLSOVETENSKAP; MEDICAL AND HEALTH SCIENCES; Muscular Dystrophy; Neuromuscular diseases; Illness; Impairment; Disability; Coping; Quality of life; Qualitative interviews; MEDICINE; MEDICIN; Nursing; Omvårdnad;

    Abstract : .... READ MORE

  3. 3. Living with recessive limb-girdle muscular dystrophy : affected young adults’ and parents’ perspectives, studied througha salutogenic framework

    Author : Anna Carin Aho; Katarina Hjelm; Gerd Ahlström; Linnéuniversitetet; []
    Keywords : MEDICAL AND HEALTH SCIENCES; MEDICIN OCH HÄLSOVETENSKAP; MEDICIN OCH HÄLSOVETENSKAP; MEDICAL AND HEALTH SCIENCES; chronic diseases; LGMD2; muscular dystrophy; parents; salutogenic; sense of coherence; young adults; Vårdvetenskap; Caring Science;

    Abstract : Aim: The overall aim of this thesis, using a salutogenic framework, was to develop knowledge about experiences and perceptions of living with recessive limb-girdle muscular dystrophy and its influences on health, from the affected young adults’ and their parents’ perspectives.Methods: A qualitative explorative and descriptive study design was used. READ MORE

  4. 4. Muscle strength and motor function in neuromuscular disorders. A clinical study of children and adolescents with spinal muscular atrophy, myotonic dystrophy, Duchenne muscular dystrophy and amyoplasia

    Author : Anna-Karin Kroksmark; Göteborgs universitet; Göteborgs universitet; Gothenburg University; []
    Keywords : muscle involvement; muscle function; motor performance; contractures; spinal muscular atrophy; myotonic dystrophy; Duchenne muscular dystrophy; amyoplasia; arthrogryposis multiplex congenita;

    Abstract : Aim: The aims of this study were to investigate muscle strength and motor function in children and adolescents with four neuromuscular disorders; 1) spinal muscular atrophy (SMA), 2) myotonic dystrophy (DM), 3) Duchenne muscular dystrophy (DMD and 4) the amyoplasia form of arthrogryposis multiplex congenita. Further: 1) to analyze compensatory maneuvers due to muscle weakness in individuals with SMA, 2) to correlate motor function in individuals with DM with the size of the mutation, 3) to evaluate the long-term side effects and effects on muscle strength, motor function, vital capacity and development of scoliosis in boys with DMD treated with low-dose prednisone, and 4) to investigate how muscle strength and joint contractures affect motor function in individuals with amyoplasia and to relate current status to joint position at birth. READ MORE

  5. 5. Living with deteriorating and hereditary disease : experiences over ten years of persons with muscular dystrophy and their next of kin

    Author : Katrin Boström; Gerd Ahlström; Berth Danermark; Anders Möller; Örebro universitet; []
    Keywords : SOCIAL SCIENCES; SAMHÄLLSVETENSKAP; SAMHÄLLSVETENSKAP; SOCIAL SCIENCES; Social sciences; muscular dystrophy; chronic disease; ten year follow up; next of kin; ICF; activity; sickness impact; hereditary aspects; illness related problems; quality of life; multimethod; content analysis; SOCIAL SCIENCES; SAMHÄLLSVETENSKAP; Disability research; Handikappsforskning; Handikappvetenskap; Disability Research;

    Abstract : The overall aim of this thesis was to elucidate haw persona with muscular dystrophy (MD) and their next of kin experience and describe their daily lives over the last ten years. MD is a group of inherited disorders characterised by muscular weakness caused by muscle wasting. Both qualitative and quantitative methods were used. READ MORE