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Showing result 1 - 5 of 14 swedish dissertations matching the above criteria.

  1. 1. Adults with Spina bifida : voices from everyday life and exploration of living conditions

    Author : Hanna Gabrielsson; Mats Eriksson; Eric Asaba; Agneta Cronqvist; Åke Seiger; Mats Granlund; Örebro universitet; []
    Keywords : MEDICIN OCH HÄLSOVETENSKAP; MEDICAL AND HEALTH SCIENCES; Spina bifida; Adults; Living conditions; Health; Photovoice; Experiences; Ryggmärgsbråck; Vuxna; Levnadsförhållanden; Hälsa; Erfarenheter;

    Abstract : The overall aim of this thesis was to generate knowledge about living with Spina bifida, by mapping the condition and together with the adults with Spina bifida explore their living conditions and experiences in everyday life. Methods Study I was a quantitative study with a cross-sectional design. READ MORE

  2. 2. Neurogenic bladder and bowel dysfunction - incontinence and life situation in adolescents and adults with spina bifida

    Author : Magdalena Vu Minh Arnell; Göteborgs universitet; []
    Keywords : MEDICIN OCH HÄLSOVETENSKAP; MEDICAL AND HEALTH SCIENCES; spina bifida; myelomeningocele; adults; life situation; follow-up; HRQoL adolescents; continence; incontinence;

    Abstract : BACKGROUND: In individuals with myelomeningocele (MMC), survival rate has significantly increased over the past 40-50 years due to medical innovations. In the coming years, many adolescents will be transferred to adult care. READ MORE

  3. 3. Children with spina bifida and their mothers in Palestine. Lived experiences, self perceived health and sense of coherence

    Author : Maha Sudki Hmeidan Nahal; Göteborgs universitet; []
    Keywords : MEDICIN OCH HÄLSOVETENSKAP; MEDICAL AND HEALTH SCIENCES; Childhood; Disability; Experience; Family; Mother; Palestine; Perceived health; Phenomenological-hermeneutical; Spina bifida; Stigma; Sense of coherence;

    Abstract : ABSTRACT The overall aim in this thesis was to describe the lived experiences of children with spina bifida (SB) and their mothers while living under specific social and cultural conditions in West Bank, Palestine. A further aim was to gain knowledge about the impact of SB on self-perceived health and sense of coherence (SOC) among a group of children and adolescents with SB in comparison to their healthy peers. READ MORE

  4. 4. To get things done, the challenge in everyday life for children with spina bifida. Quality of performance, autonomy and participation

    Author : Marie Peny-Dahlstrand; Göteborgs universitet; []
    Keywords : spina bifida; myelomeningocele; lipo-myelomenigocele; performance skills; autonomy; participation; Assessment of Motor and Process Skills AMPS ; School Function Assessment SFA ;

    Abstract : The overall aim of this thesis was to increase knowledge of the quality of performance of everyday activities, autonomy and participation in children with spina bifida (SB) and to explore how they relate to each other. Methods: In Study I, the quality of performance of everyday activities in 50 children with SB (of the 65 in a population-based cohort) aged 6 to14 years was assessed with the Assessment of Motor and Process Skills (AMPS). READ MORE

  5. 5. Fetal Anomalies : Surveillance and Diagnostic Accuracy of Ultrasound and Magnetic Resonance Imaging

    Author : Hashem Amini; Ove Axelsson; Johan Wikström; Pelle Lindqvist; Uppsala universitet; []
    Keywords : MEDICIN OCH HÄLSOVETENSKAP; MEDICAL AND HEALTH SCIENCES; Pregnancy termination; fetal anomalies; antenatal diagnosis; ultrasound; second trimester; fetal MRI; CNS anomalies; pregnancy management; non-CNS anomalies; fetal autopsy; birth defects registry; ascertainment; spina bifida; cleft lip palate; Obstetrics and women s diseases; Obstetrik och kvinnosjukdomar; Obstetrics and gynaecology; Obstetrik och gynekologi; Obstetrik och gynekologi; Obstetrics and Gynaecology;

    Abstract : The aims were to investigate the accuracy of ultrasound in diagnosis of structural fetal anomalies with special focus on false positive findings (I), to evaluate the additional value of second trimester fetal MRI on pregnancy management (II-III) and to estimate the ascertainment in the Swedish Birth Defects Registry and incidence of spina bifida and cleft lip/palate (IV). Retrospectively, 328 fetal autopsies were identified where pregnancies were terminated due to ultrasonographically diagnosed fetal anomalies. READ MORE