Search for dissertations about: "direct-to-consumer genetic testing"

Found 2 swedish dissertations containing the words direct-to-consumer genetic testing.

2. 1. European Legal Perspectives on Health-Related Direct-to-Consumer Genetic Testing

   Author : Santa Slokenberga; Elisabeth Rynning; Jane Reichel; Tamara Hervey; Uppsala universitet; []
   Keywords : SAMHÄLLSVETENSKAP; SOCIAL SCIENCES; direct-to-consumer genetic testing; legal pluralism; state sovereignty; coexistence; privacy; consent; technical performance; utility; Medicinsk rätt; Medical Law;

   Abstract : This doctoral thesis examines how the coexistence of the Council of Europe and the EUinfluences rules on direct-to-consumer genetic testing, as well as how these influencesreflect on individual states that are simultaneously bound to both of the legal orders ofinterest.Through the lens of legal pluralism and state sovereignty this research examines thecompetence and authority of the Council of Europe and the EU to handle the market aspects(technical performance and utility) as well as privacy (consent to a medical serviceand data protection requirements), and examines the obligations these two legal ordersplace on the Member States of the EU. READ MORE

4. 2. To Share or Not to Share? : Expectations of and Experiences with eHealth Services that Allow Users Access to their Health Information

   Author : Christiane Grünloh; Jan Gulliksen; Åke Walldius; Gerhard Hartmann; Sabine Koch; KTH; []
   Keywords : NATURVETENSKAP; NATURAL SCIENCES; eHealth; electronic health records; technological frames; expectations; patients; health care professionals; Människa-datorinteraktion; Human-computer Interaction; Technology and Health; Teknik och hälsa;

   Abstract : This thesis investigates expectations of and experiences with eHealth services that allow users access to their health information. Although eHealth services are endorsed by many politicians and patients, they are met with strong resistance by health care professionals. READ MORE