Elderly people's perceptions about care and the use of assistive technology services (ATS)

Abstract: Values associated with the care of the elderly have changed and developed during the last decades due to socio-political changes. Dignity is a basic concept for quality care regardless of how and where care is given. Assistive Technology Services (ATS) are used to promote quality care and support for care-dependent elderly living at home. Previous research has described quality care and the use of ATS in care; however, as values change over time it is necessary to illuminate values in care. The overall aim of this licentiate thesis was to describe elderly peoples' perceptions about care and the use of ATS if care is needed in the future. Qualitative research interviews were conducted with twelve healthy elderly couples living in their own homes. All participants were 70 years of age or older and received no professional care or social support. Open, individual, semi-structured interviews were conducted and analysis was supported by written vignettes describing three levels of care needs. A qualitative content analysis was used to analyze the interviews. This study shows that regardless of the health scenario presented ranging from required care while remaining in the home with a healthy partner to total dependence for care without a partner in the home; participants strived to maintain the self and desired dignified care at the end of life. As the health scenarios were changed they discussed new solutions to achieve the goals of individuality and dignity. The best care was related to their home and their relationship to the partner and later on the best care was perceived as being in a nursing home with well educated nursing staff. Participants hoped that nursing competence included a basic nursing competence as well as respect, compassion and ability to closeness. The risk of losing one's individuality and becoming anonymous without meaningful relationships was a pervading concern amongst participants. There were also a broad range of perceptions regarding the use of ATS in care. ATS was seen as either an asset or a threat depending on care needs and abilities. The use of ATS was viewed positively by participants of the study since it would enable them to continue a normal life even if they had some disabilities. The trust they experienced in their relationship with their partner was a firm foundation for learning and handling new technology. Hesitation in their abilities to use ATS increased if they lacked a partner and their cognitive impairment increased. Hesitation turned to fear and revulsion against the use of ATS if they were dependent for their care and they did not have a partner at home to assist them. These findings highlight elderly peoples' values about quality care and the use of ATS in care and should be taken into consideration when planning care of the elderly, and implementing new technology related to their care.